2019-11-18

Ep 093 -- The Grace of Stroke with Vince Holland


There is beauty in social media. Not in the trolling, harassment, or fake news it too often promotes, but in the connections it facilitates.

My work on the show and Instagram brought me in contact with Vince Holland. This week, he shares his perspective on stroke and recovery.

Bio

Vince Holland looks straight at the camera in this headshot.

Vince Holland was a busy many. He worked 2 jobs and was raising a family.  He approached everything with a go go go attitude. He lifted weights, kept his weight under control, watched his blood pressure — basically did everything you’re supposed to do to prevent a stroke.

Unfortunately, for some unknown reason, it wasn’t enough in his case.

On July 4, 2016, he found himself laying on his parents’ kitchen floor while his Navy Corpsman brother worked to assess his condition. He had suffered a cryptogenic, ischemic stroke. That means a blood clot appeared in his brain, and doctors still have no idea how it happened.

And thus began his new life.

Three key lessons

First

If you suspect someone is having a stroke, call an ambulance. Do not drive yourself or them to the hospital. Even if you think an ambulance might take longer, remember that triage will happen in that ambulance, and treatment can start in that ambulance. And when you get to the ER, you don’t have to start triage there surrounded by other patients.

Also, if you call an ambulance, they can drive you or the person you called about to the right hospital and avoid wasting time going to a hospital that may not be able to treat the stroke properly and promptly.

Second

There is tremendous power in goal setting. Vince talked about how valuable goals were for his recovery and how they can still support it. Goal setting has been a big theme recently on this show. Last week, I talked with Restorative Therapies about how their gear can measure progress towards goals. A few weeks ago, I talked about both e the importance of the Quantified Self, and how to set SMART Goals.

Third

Vince talked about the grace of the stroke. Joe from Neuro Nerds talked about his stroke as a blessing. Jan Douglas named her book, A Wonderful Stroke of luck. In “Tell Me Everything You Don’t Remember,” Christine Lee said about her stroke that she, “learned to accept that bad events do not have to remain bad events.”

It’s not an uncommon refrain, though I know many survivors don’t feel the same way. The point is good can come from this trauma. Hope can come from this trauma. A new life can come from this trauma.

No one is recommending that someone go have a stroke to improve their lives. That would be a terrible idea. But once we’ve been through this maelstrom, we have to stop and ask, “What now?” What do I do with this new life I have ahead of me? What can I learn and grow from this? And how can I live my best life going forward.

Hack of the Week

Use whatever tools you have available to supplement your memory. These days, you don’t need to have a great memory. Calendar and Notes apps on smart phones are great. So are digital assistants like Siri or Google Assistant.

Cameras in phones are also under appreciated. From pictures of your license plate or parking spot, to the door of the appointment your supposed to go to the empty spice bottle you need from the grocery store, taking pictures of things you need to remember can be invaluable.

Links

Vince Holland on Instagram

http://Instagram.com/Vince.856

Vince Holland on Twitter

http://Twitter.com/Vince_856

Vince Holland on Snapchat

Vince_856

Vince Holland On The Stromies’ Blog

https://stromies.com/blog/guest-blog-vince-holland/

Ram Dasss

https://www.ramdass.org/

Stroke Comeback Center

https://strokecomebackcenter.org/

Slow Road to Better on Strokecast

http://Strokecast.com/SlowRoad

Christine Lee on Strokecast

http://Strokecast.com/Christine

Joe Borges on Strokecast

http://Strokecast.com/NeuroNerds

Jan Douglas on Strokecast

http://strokecast.com/awonderfulstrokeofluck

SMART Goals

http://Strokecast.com/SMARTGoals

Quantified Self

http://Strokecast.com/Quantified

Restorative Therapies on Strokecast

http://Strokecast.com/RSI

The Stromies on Strokecast

http://Strokecast.com/Stromies

Where do we go from here?

Strokecast is the stroke podcast where a Gen X stroke survivor explores rehab, recovery, the frontiers of neuroscience and one-handed banana peeling by helping stroke survivors, caregivers, medical providers and stroke industry affiliates connect and share their stories.


Here is the latest episode of The Strokecast

2019-11-09

Ep 092 -- FES for Stroke Survivors


Olivia and Emilee were my two, awesome inpatient OTs a couple years ago, and we stayed in touch after I left the hospital.

One day, Olivia told me about the amazing new $40K rehab bike they just got. They were getting great results with patients. It’s too bad my stroke didn’t happen a year later.

The new device was the RT300. It combines therapy, eStim, and data with exercise to help patients improve their core, their leg use, their arm use, or all three at once.

So Olivia put me in touch with Restorative therapies.

sStim

The brain controls the muscles and makes us move by sending electrical signals through our nerves with various chemical processes. After stroke the brain may no longer be able to do that to certain muscles. That’s how we get paralysis, hemiparesis, and all sorts of similar issues.

That also means that we can bypass the brain and move those muscles by sending an electrical signal directly to the nerves at the muscle to stimulate them to make them move. This is great because movement is important to both health and recovery.

And that’s what eStim does.

The most popular eStim for Stroke survivors is TENS. This is the type I used in the hospital and later at home. I attach a couple electrodes to my affected arm, and for 30 minutes, my hand will open and close. Or my wrist will go up and down. Or I’ll do something with my shoulder.

Combining eStim with exercise is great therapy and promotes recovery.

And the units cost about $40 on Amazon.

FES is the type of eStim you’ll find in the Bioness products and the WalkAide. These devices use eStim to prevent foot drop and replace an AFO. The user wears it strapped below the knee as they walk, and it stimulates the muscle that lifts your foot as you walk.

I tried them both and had some good results with the WalkAide. At $5,000, though, it didn’t make enough of a change in my life to justify buying it.

IFES is the technology Restorative Therapies uses in their RT300 bike and Xcite treatment device. The use eStim on up to 12 muscles at once in a specific, timed pattern to accomplish a task. It’s complex, but it can help the brain relearn to do these things in the future.

Restorative Therapies Team

Jim Janicki Headshot

Jim Janicki is the President and CEO of Restorative Therapies. Jim has an extensive management background in sales, R&D,  and operations in the chemical, medical, diagnostic, pharmaceutical, and biotech industries. He joined Restorative Therapies in 2018.

Wendy Warfield headshot

Wendy Warfield is the Clinical Education Manager. She makes sure that patients, therapists, physicians, and researchers understand how to most effectively use the Restorative Therapies devices. Wendy is well-suited for this role . She began working at an Occupational Therapist in 2003, and bring that survivor focused perspective to the work that she does.

Me and the xCite

Some weeks back, I got to try the xCite. I got to work with the reps Stephanie and Michael when they visited the Seattle areas.

Unlike the bike, the Xcite is only for clinical use. It features a series of preprogrammed activities like reaching for a water bottle or brushing your hair. It fires the nerves in sequence so the muscles do what they need to do for me to complete the act.

Here are some pictures and a video from my experience.

Stroke Stories

On another note, Stroke Stories, a UK podcast focused on, well, stroke survivor stories, featured my story on episode 50. You can listen to it here:

The show mostly features UK survivors, but more recently has been including folks from other parts of the worlds. I enjoy listening for the wide range of folks the bring on the show.

It’s also different from other podcasts in that it features a narrator rather than a host and a guest. Basically, the person who interviewed me does not appear in the show. His job was to help me tell my story and get out of the way. In that respect, it’s more like a radio show.

Definitely check it out and add it to the list of podcasts you regularly listen to.

Hack of the Week

Wendy’s hack for us is to keep moving. Movement is important to recovery. It keeps the muscles and tendons healthy and flexible. It’s important for cardio vascular exercise.

Getting the appropriate exercise helps with heart health, blood pressure, and can reduce the risk of another stroke.

Even if we have physical limitations today, moving as much as possible makes future recovery more realistic.

While some exercises may be better than others, you don’t have to get caught up in details. The important thing is to just keep moving.

Links

Restorative Therapies on the web

https://restorative-therapies.com/

Restorative Therapies on Twitter

https://twitter.com/restothera

Restorative Therapies on Instagram

https://www.instagram.com/restothera/

Restorative Therapies on YouTube

https://www.youtube.com/user/restothera

Restorative Therapies on LinkedIn

https://www.linkedin.com/company/restothera/

Restorative Therapies on Facebook

https://www.facebook.com/restothera/

Kennedy Krieger Institute

https://www.kennedykrieger.org/

RT300

https://restorative-therapies.com/ifes-systems/rt300/

Xcite

https://restorative-therapies.com/ifes-systems/xcite/

TENS on Amazon

https://www.amazon.com/s?k=tens&ref=nb_sb_noss_2

Emilee on Strokecast

http://Strokecast.com/Emilee

Lana Malovana on Strokecast

http://Strokecast.com/Raccoon

Dr. Shah and Sentinel Healthcare

http://Strokecast.com/Sentinel

Lauren Sheehan on Strokecast

http://Strokecast.com/Lauren

Bioness

http://www.bioness.com/Home.php

WalkAide

https://acplus.com/walkaide

Jim janicki on LinkedIn

https://www.linkedin.com/in/jim-janicki-26884b/

Stroke Stories Podcast

https://www.stroke.org.uk/life-after-stroke/stroke-stories-podcast

Bill on Stroke Stories

https://play.acast.com/s/strokestories/strokestoriesepisode50-billmonroe

Where do we go from here?

  • To learn more about the RT300 bike, the Xcite device, or Restorative Therapies, check out their website at  https://restorative-therapies.com/.
  • Ask your PT or OT about their thoughts on IFES.
  • Share this episode with someone in your life by giving them the link http://Strokecast.com/RSI
  • Subscribe to Strokecast and Stroke Stories in your favorite podcast app so you never miss an episode
  • Don’t get best…get better.

Strokecast is the stroke podcast where a Gen X stroke survivor explores rehab, recovery, the frontiers of neuroscience and one-handed banana peeling by helping stroke survivors, caregivers, medical providers and stroke industry affiliates connect and share their stories.


Here is the latest episode of The Strokecast

2019-11-03

Ep 135 -- Connecting with the Ambassador of Happiness


2-Minute Tip — Connect with Your Audience

 

Before speaking, meet your audience members. In a small meeting, maybe that means greeting them as they come in to the conference room. At a larger event, that may mean mingling with attendees in the venue.

 

By meeting with some of your attendees before you speak, you start to build a connection and a more personal relationship. It can make your audience instantly more friendly to you as a result.

 

It can also give you Valuable information about things that are on the audience’s minds that you may be able to incorporate into your talk. There are all sorts of valuable things that can come from those connections.

 

Additionally, it can help distract you from your own nerves in the lead up to your talk.

 

Maura Sweeney — The Ambassador of Happiness

 

Maura Sweeney is the world’s Ambassador of Happiness. She has built a career around speaking as part of traditional corporate roles she’s held and later as an entrepreneur.

 

The recurring theme in this episode is connection — how you connect with your audience on a personal level and the importance of connecting your message with your stories. Those connections all need to be internally consistent find success and happiness in public speaking.

 

Bio

 

AuthorPodcaster, and International Speaker, Maura Sweeney has transformed her own mantra of “Living Happy – Inside Out” to become a global influencer.

 

A former corporate manager and home schooling mom transitioned again at age 50 to make her life long goal a reality. Today, she brings uplift and unity to an often disempowered and divided world.

 

A former HuffPost columnist who has traveled to 60 countries, Maura was first called the Ambassador of Happiness by the UNESCO Center for Peace when invited to speak at the inaugural Nelson Mandela Day celebration. Since then, she’s trademarked her title and become a popular media guest featured on hundreds of media outlets in the U.S., Europe, Africa and Australia.

 

Maura has lectured on Influence and Leadership at universities, leadership conferences, women’s organizations, Model UN’s and several American Embassy outposts. In 2018, she was named Women of the Decade at the Women Economic Forum held in The Hague. Maura Sweeney’s genuine and first-hand approach empowers others of every background to become their finest version of self and helps us see what’s best in us all.

 

Maura just released an ecourse for Personal Leadership, Happiness and Authenticity on the Ingomu Learning Platform.

 

Links

 

 

Call To Action

 

  • So check out Maura’s books, podcast, and more. You can find all those links above
  • Connect with someone in your life by giving them the link http://2MinuteTalkTips.com/Maura
  • Subscribe to 2-Minute Talk Tips for free in your favorite podcast app so you never miss an episode.
  • Don’t get best…get better.

 

2-Minute Talk Tips is the public speaking podcast that helps you become a more effective speaker in as little as 2 minutes a week.


Check out this episode!